Workshop Data and Stories in Digital Health Care. Mixed Methods for Medical Humanities
The workshop “Data and Stories in Digital Healthcare” examines the mutual entanglements of the humanities with medicine and data science. It focuses on the variety of forms in which information about health and illness travel between different stakeholders, such as patients and health care professionals.
Call for abstracts
We invite contributions that explore the following – or related – issues:
the problem of scale in data and stories (big data, singular stories)
data and stories as chronotopes
reading images: data visualization, coding and aesthetics
medical documentation and the coding of data and stories
seriality and casuistic approaches to data and stories
negotiating uncertainty and ambiguity through practices of quantification
We particularly invite early career researchers (postdocs, PhD-students, Master students) from the humanities, data sciences and medicine who are working at the intersections of stories and data and have a pronounced research interest in mixed methods.
Please send an abstract of max. 300 words of your proposed presentation along with your contact details and a short academic bio to: email@example.com and firstname.lastname@example.org by October 1, 2019. Applicants will be notified by October 15, 2019.
The workshop is funded by the Volkswagen Stiftung (program: “Mixed Methods in the Humanities”). Travel expenses, accommodation and meals will be reimbursed for invited participants. A number of pre-selected speakers have confirmed their participation in the workshop; among them are Kirsten Ostherr, Fritz Breithaupt, and Arthur Frank.
Interview with Elizabeth Newnham, lecturer in Midwifery at Griffith University, Australia.
1. Where are you working at this moment?
Since January this year, I have been working as a lecturer in midwifery at Griffith University. I currently teach in the Masters in Primary Maternity Care – a postgraduate programme that implements the ‘Framework for Quality Maternal and Newborn Care’ from the Lancet series on midwifery and supports the development of maternity care leaders who can design, implement, and evaluate leading-edge primary maternity care models. Before this I was at Trinity College Dublin for two years, which was also a wonderful experience.
2. Can you tell us about your research and its relation to care ethics?
I am only at the beginning of my exploration into care ethics. During my doctoral research, which was an ethnographic study of epidural analgesia use within a hospital labour ward setting, I really started to think deeply about the idea of informed consent, an idea which is completely embedded into health care practice and based on the bioethical principle of autonomy.
What I saw in practice, in my research, and around the world within the maternity context, is that when we follow the principle of autonomy to its endpoint – when women are wanting to make decisions about their bodies, but outside of medical recommendations, then they appear neither to have autonomy nor the opportunity to give informed consent.
There are cases all over the world of women being bullied, coerced, threatened or forced into decisions about their bodies that they disagree with—this is not only unethical, it is dehumanised care. This is something I now want to explore further using a care ethical framework.
3. How did you get involved in care ethics?
As I was thinking about this problem, I came across an article by Jennifer MacLellan(( MacLellan J. 2014. Claiming an ethic of care for midwifery. Nurs Ethics, 21(7), 803–811. DOI: 10.1177/ 0969733014534878)) proposing that midwifery look to care ethics as a solution to some of these issues. This interested me, so I then read Joan Tronto’s Moral Boundaries((Tronto J. 1993. Moral boundaries: a political argument for an ethic of care. London: Routledge)) and also looked at Carol Gilligan’s In a different voice and started to explore articles on the topic. However, I was particularly drawn to the way that Tronto brought the political into care ethics.
4. How would you describe care ethics?
As a midwife who also has degree in Politics, I see care ethics as a politicised ethics. Drawing on Tronto’s care ethics argument, it is important that power relationships are made visible when we are talking about care, ethics and all things in between, such as bodily autonomy and decision-making.
There is also an emphasis on relationality—attentiveness arises between people, rather than passed from one person to another as are autonomy and consent—and on the recognition of the asymmetry of these relationships. People are not necessarily equal, especially at the time of care-giving and care-receiving, as to require care is to have some level of vulnerability.
The way that Tronto makes care central to human life is also a great shift in how we think about care. Which has traditionally been relegated to the private/female sphere, and has often been unpaid, unrecognised and undervalued, while generating wealth, goods or power has typically been hyper-valued. This is one of the most important aspects of care ethics – that care is actually central to who we are as a species and to our survival and therefore deserves attention.
5. What is the most important thing you learned from care ethics?
I am still at the early stages of learning, but I suppose at this moment the most important thing has been that the concept of autonomy, so central (and for the most part unquestioned) to my teachings in midwifery, can be unpacked to reveal assumptions about individualism, agency and equality that are not apparently obvious, and which actually recreate power relationships.
6. Whom would you consider to be your most important teacher(s) and collaborators?
I am lucky to have found several brilliant and supportive teachers/mentors over the years. But, specific to ethics, I must mention Mavis Kirkham, with whom I co-authored a recent article on care ethics(( Newnham, E., & Kirkham, M. (2019). Beyond autonomy: Care ethics for midwifery and the humanization of birth. Nursing Ethics. DOI: 10.1177/0969733018819119)).
I remember reading her work as a midwifery student – the results of an ethnographic study that demonstrated how the institution could effectively come between the midwife-mother relationship. And that really struck me. It provided an explanation, and perhaps a solution, to the discord that I was feeling in practice. It is, of course, an ethical dilemma – to be in a profession that is at its foundation woman-centred and yet midwives find themselves everyday having to support the needs of the institution over the needs of the woman.
I am also enjoying some correspondence with Inge van Nistelrooij, and some of her colleagues at the University of Humanistic Studies, Utrecht. They have extensive experience and publications in the field of care ethics, and with whom I share a common interest of care ethics in maternity. We have begun some interesting discussions and hope to work on some projects together in the future.
I look forward to collaborating with my new colleagues in the midwifery team at Griffith University. If we consider the university (and academia) as an institution with its own power relationships, Midwifery@Griffith embodies a kind of ‘care ethics’ in the practice of a collaborative collegiality that is also founded on relationality and mutual support, is student-centred, with a transformative education philosophy and commitment to improving maternity care systems in Australia.
7. What publications do you consider the most important with regard to care ethics?
Again, I am quite new to this, but I really favour Tronto’s thesis in Moral Boundaries. I have read some of Elisabeth Conradi’s work on attentiveness within institutions and the simplicity yet importance of this in practice also strikes a chord. I look forward to exploring more publications on care ethics, both seminal and emerging.
8. Which of your own books/articles/projects should we learn from?
The most obvious would be Mavis Kirkham and my recent article on the topic of care ethics in midwifery:
Newnham E & Kirkham M. 2019. Beyond autonomy: Care ethics for midwifery and the humanization of birth, Nursing Ethics. DOI: 10.1177/0969733018819119
My PhD Thesis was published as a book in 2018 by Palgrave Macmillan and is called Towards the humanisation of birth: A study of epidural analgesia and hospital birth culture. Although not about care ethics, ethical practice and informed consent do come into it. It might also be of interest to anyone looking into hospital birth culture, midwifery practice, the experience of childbirth, maternity policy or ethnography.
Articles published from this doctoral research include:
Newnham, E, McKellar, L & Pincombe, J 2017. It’s your body, but…’ Mixed messages in childbirth education: findings from a hospital ethnography, Midwifery 55: 53–59.
Newnham, E, McKellar, L & Pincombe, J 2017. Paradox of the institution: findings from a hospital labour ward ethnography, BMC Pregnancy and Childbirth 17(1): 2-11.
Newnham E, McKellar L, Pincombe J 2016. Critical Medical Anthropology in Midwifery Research: A Framework for Ethnographic Analysis, Global Qualitative Nursing Research 3: 1–6. DOI: 10.1177/2333393616675029.
Newnham E, McKellar L & Pincombe, J 2015. Documenting risk: A comparison of policy and information pamphlets for using epidural or water in labour, Women & Birth 28(3): 221-227.
Newnham E, Pincombe J & McKellar L 2013. Access or egress? Questioning the “ethics” of ethics review for an ethnographic doctoral research study in a childbirth setting, International Journal of Doctoral Studies 8: 121 – 136.
9. What are important issues for care ethics in the future?
I think care ethics, by Tronto’s definition, as ‘a species activity that includes everything we do to maintain, continue, and repair our ‘world’ so that we can live in it as well as possible.’ (Tronto 1993, p. 103) is actually crucial to our future survival. The emphasis on care as a practice is a message that could help with numerous current global problems, the most obvious being the environment.
10. How may care ethics contribute to society as a whole, do you think?
Care ethics provides an ethical grounding for promoting social justice. It does this by inserting an understanding and recognition of power into ethical thinking, by placing increased value on relationality, by recognising vulnerability and embodiment as central principles of existence, by emphasising the need for a dialectical ethics that moves between practice and theory, and in doing all of this, exposing the falsehood that late capitalism and neoliberalism perpetuate – that the pursuit of profit and power, status or material possessions are to be valued over humanity, care and equity.
11. Do you know of any research-based projects in local communities, institutions or on national levels, where ‘care’ is central?
I think care is talked about a lot, especially in the health sector – but is not always understood in the same way by different groups. I know of no current Australian research in which care is central – but as I hope to begin work in this area I am sure I will find out if/where these may be.
12. The aim of the consortium is to further develop care ethics internationally by creating connections between people who are involved in this interdisciplinary field, both in scientific and societal realms. Do you have any recommendations for us?
No recommendations as such. I think this consortium is a really good starting point, because connection, especially between disciplines, is needed to keep ideas growing and developing. The CERC conference would be great way to create connections and new networks, and I look forward to attending one. There is something about having dedicated time and space to discuss concepts, current research and new ideas with other interested people – an embodied relationality perhaps – that can be deeply inspiring.
Care Ethics and Poetry is the first book length work to address the relationship between poetry and feminist care ethics.
The authors argue that morality, and more specifically, moral progress, is a product of inquiry, imagination, and confronting new experiences. Engaging poetry, therefore, can contribute to the habits necessary for a robust moral life—specifically, caring.
Each chapter offers poems that can provoke considerations of moral relations without explicitly moralizing. Topics include Poetry and Ethics, Habits of Caring Knowledge, Habits of Imagination, Habits of Encountering Singularity, and Moral Progress. The book contributes to valorizing poetry and aesthetic experience as much as it does to reassessing how we think about care ethics.
Primarily a book of philosophy rather than literary analysis, Care Ethics and Poetry includes dozens of poems. For those who view care theory as more than a normative ethic of adjudication, this will be an important work.
“A lovely tribute to both poetry and care ethics and how, together, they increase moral sensitivity and joy in our relationships.” Nel Noddings, Lee Jacks Professor of Child Education, Emerita, Stanford University
“Finally, a book that does justice to care by welcoming complexity, context and creativity. This polyvocal book delightfully and meticulously tells us the story about a performative and aesthetic approach to caring and moral progress. Slowly but surely, one becomes part of an intimate tapestry of voices of poets, ethicists and moral philosophers. Hamington and Rosenow not only provide us with new ethical language, they also evoke wonder and a longing for more.” Merel Visse, Associate Professor of Care Ethics, University of Humanistic Studies, The Netherlands
Elena Cologni is an artist whose research practice has had a sustained in(ter)disciplinary approach. After a BA in Fine Art from Accademia di Belle Arti Brera in Milan, and a MA in Sculpture from Bretton Hall College, Leeds University, Cologni was awarded a scholarship for a PhD in Fine Art and Philosophy from University of the Arts, Central Saint Martins College, London, 2004 (CSM).
Where are you working at the moment?
I am based in Cambridge (UK), where I had also managed for a few years the artistic research production platform Rockfluid to work internationally, and address with an in(ter)disciplinary approach issues of memory, perception and place.
I am now bringing to conclusion the project CARE: from periphery to centre commissioned for the 250th Anniversary of Homerton College, at the University of Cambridge. This included an exhibition and site-specific installation developed in response to the history of the college, through research in the archive, and in consultation with the 250 Archive Working Group, including archivist Svetlana Paterson, historian of science Dr Melanie Keene, and educationalist and social historian Dr Peter Cunningham.
Can you tell us about your research and its relation to care ethics?
The mentioned project, draws on the College architecture (Ibberson Building, 1914), and on two key figures in its history: Maud Cloudesley Brereton (formerly Maud Horobin, lecturer and Acting Principal, 1903), and Leah Manning (student 1906-08). Both of international importance, they were concerned with health, well-being, and education, and I am specifically interested in how they engaged with care in domestic (Brereton published the book ‘The Mothers’ Companion, 1909) and international political contexts (Manning organised children’s escape from the Spanish fascist regime, 1929).
A display of items from the archive gives a snapshot of early 20th-century life in a women’s College, while focusing on practices of care in society and in students’ learning, through domestic studies, teachers training in medicine, health, and physical education, academic subjects which were considered less central than others, but more ‘appropriate’ for female students.
These themes underpin my sculptural installation designed in response to the 1914 Ibberson building (a former gymnasium), and echoed in the Queen’s Wing (housing the new gym) opening to a glass veranda, flowerbeds and lawn.
Moreover, after an exchange with care ethics’ philosopher Virginia Held, I was able to contextualise my practical work, and focus on aspects of womanhood, relationally and reciprocity at the core of the approach. This process is evidenced throughout the exhibition, including the recorded development of my thinking in a Moleskine sketchbook, and a selection of extracts from one of the publications Held shared with me informed a series of custom-made fabric labels, the steel frieze construction (Care As Support), and the steel and rope made sculptures (Relations Of Care).
How did you get involved in care ethics?
In the current project care ethics functions as the lens through which I responded to the College archive, but I have been working in this direction even if I did not addressing it directly for some time. It naturally evolved from understanding the dialogic approach in my artistic process as a reciprocal form of caring (from the part of myself as the artist, and that of the participant), while building on educationalist, sociologist and poet Danilo Dolci, who theorised and adopted Reciprocal Maieutics (1973).
Learning about his work and talking to people who were close to him, allowed me to become aware of the impact of the reciprocal giving process involved (Cologni 2016), also typical in ecological and feminist approaches. This experience still is at the core of my creative thinking and it was embedded at the time in a series of dialogic sculptures for hands (Lo Scarto).
More recently the project Seeds of Attachment (2016/18), a specific feminist lens (discussed at New Hall Art Collection in Cambridge and Freud Museum in London), allowed me to focus on undervalued roles of care in society, as I worked with region based participants, and in particular on motherhood in collaboration with the Centre for family Research in Cambridge. This had been previously addressed through the project ‘U Verruzze’ (2013), looking at trust between mother and child and curated by Vessel.
However, in the latest work, the emphasis is on the caring role of motherhood in society in a wider sense. This, similarly to other practices of care in society, is undervalued, even if hugely contributing to our economies and welfare. The project tried to identify intersections between the theory of attachment of parent and child and place attachment, by proposing encounters on the school-run (the route from home to school), thus highlighting a sort of geography of difference of caring. This was done by using a dialogic sculpture to create a physical and conceptual new place for the encounter to happen: the intraplace.
How would you describe care ethics?
Care ethics allows us to step out of the dominant social, political and cultural system of understanding society and relations, and look at the peripheral (not the central) instead: the circular (not the linear) thinking, the quiet (not the loud) voices in society as strengths (not weaknesses). Care Ethics teaches and trains us not to get tempted to compete by adopting the same strategies, which have damaged our society and environment, but try different avenues instead.
Learning to take care also means to foster and create new connections to solve problems in society, something at the core of some non-western countries’ ethos (eg. Ubuntu). Essentially care ethics has listening at its core, as much as most dialogic approaches including Dolci’s, and a lot can come from practicing it.
What is the most important thing you learned from care ethics?
As an artist and academic, I have referred to phenomenology the most since early on (1999-2004), while also understanding the participants’ and audience’s reception of my work through aspects of psychology, and considering lived experience as central to my work. Care ethics showed me how to position my subjectivity, within this tradition.
Virginia Held for example states that “Experience is central to feminist thought, but what is meant by experience is not mere empirical observation, as so much of the history of modern philosophy and as analytic philosophy tend to construe it. Feminist experience is what art and literature as well as science deal with. It is the lived experience of feeling as well as thinking, of performing actions as well as receiving impressions, and of being aware of our connections with other persons as well as of our own sensations.” (2006)
Whom would you consider to be your most important teacher(s) and collaborators?
My interest in how care can be embedded in art evolved from considering its perceptual and psychological component since my early studies in Italy, which led to include specific strategies for enhancing social awareness and engagement. This was inspired by artists from the 60s and 70s, whose approaches impact society to this day in different ways. These are, including: the psychology informed approaches by Bruce Nauman, and Grazia Varisco (Varisco taught me at Brera Academy in Milan); the sociology related one by Dan Graham; the active participation and empathy in Lydia Clark’s, and the social actions and positioning by Artists Placement Group (APG) and Steven Willats.
In addition, I partially owe my unconventional research journey to experimental film maker and great mind Malcolm Le Grice, who was the director of studies of my PhD at Central Saint Martins in London from 1998. Generally, in my projects, my collaborators are carefully chosen and approached to take part in the initial investigation and research and/or in aspects of the creative process as participants.
What publications do you consider the most important with regard to care ethics?
I can mention the references which are useful for me to consider a very small portion of this wide area of study, and specifically to do with care in relation to women’s position in society, dialogic strategies and ecology. I would mention Nel Noddings’ developed idea of care as a feminine ethic, drawing conceptually from a maternal perspective (Caring: A Feminine Approach To Ethics And Moral Education, Berkeley: University Of California Press, 1986), and understanding caring relationships to be basic to human existence and consciousness. Also, Annette Baier underscores trust, as a basic relation between particular persons, and as the fundamental concept of morality (Trust and Anti-trust, Ethics 96: 231-60, 1986).
Virginia Held wrote numerous publications on care ethics, in which she construes care as the most basic moral value, and describes feminist ethics as committed to actual experience, and lived methodologies. One of the most recent books is Ethics of Care, Personal Political and Global (New York, NY: Oxford University Press, 2006). Held argues that rights based moral theories presume a background of social connection, and that care ethics can help to create communities that promote healthy social relations. In this context, I argue that art can be a powerful dialogic tool.
Which of your own books/articles/projects should we learn from?
My artistic approach has developed through steps of a personal journey, each of which investigates different aspects of the same unsettled condition of a human being in search for home. However, in the body of work since 2014 the subject matter has become more specific and so has my awareness of the impact of my participatory strategies.
For example, the project Lo scarto, a workshop based project also including 40 sculptures for hand and drawings, developed in Sicily, where Danilo Dolci worked, a process of visualization of the role of listening in dialogue (Unesco and European Funding, 2015), allowed for a non-verbal dialogic strategy to emerge therein. This is discussed in the book chapter Cologni, E. (2016) ‘A Dialogic Approach For The Artist As An Interface In An Intercultural Society’. In Burnard, Mackinlay, Powell, The Routledge International Handbook of Intercultural Arts Research New York, London: ROUTLEDGE.
While the site responsive art project Lived Dialectics, Movement and Rest at Museums Quartier in Vienna, was informed by walks (sic) and research on place attachment in dialogue with US based environmental psychologist David Seamon (discussed at the Leonardo Laser series of talks at Central Saint Martins College University of the Arts London and Westminster University, in 2016, and the Leonardo 50th Conference, 2017, Bologna, Italy, published as Cologni, E. (2018) ‘LOCATING ONESELF’, in The New and History – art*science 2017/Leonardo 50 Proceedings. Capucci and Cipolletta (Eds), Noema Media and Publishing – ISBN 978-88-909189-7-1). This project informed the development of Seeds of Attachment, which, together with my ongoing relevant research will be included in a book.
What are important issues for care ethics in the future?
My interest is now in a possible link between ecofeminism and care ethics (Held) through practices of care. I am trying to embed the adoption of dialogic (inherently interdisciplinary) strategies in the creation of the work, a form of socially engage art practice. These include responding to the spatial (Linda McDowell), social (Henry Lefebvre), and cultural dimension of a place, as well as engaging with specific communities and collaborators therein to create situated (Donna Haraway) and embodied knowledge (Luce Irigaray). My projects often develop through collaborating, and thus becoming part, of interdisciplinary contexts.
For example, the current project was developed in collaboration with the College 250 Archive Working Group and involved subjects like science, education and architecture. However, in my practice, consistent concerns with ecofeminism and place are informed by ongoing conversations with Professor Susan Buckingham (feminist geographer, Cambridge, UK), whereas the artistic strategies with curator Gabi Scardi (Milan, Italy, International Development Fund British Council/Arts Council England, 2018/19), and in reference to historical artists like Mierle Laderman Ukeles (Maintenance Art Works 1969–1980).
How may care ethics contribute to society as a whole, do you think?
I am interested in the fact that it takes us to look at things from a different angle, consider our actions and experience, to then realize how we can contribute to society. More specifically sharing through art, strategies and concerns I have as a mother myself was quite natural, and this will hopefully lead to make people more aware of how they can contribute themselves to society in the everyday. Joan Tronto and Berenice Fisher have defined ‘‘taking care of’’ as an activity that includes ‘‘everything that we do to maintain, continue, and repair our ‘world’ so that we can live in it as well as possible” (1990), and this is so relevant now and must be implemented at a social and environmental levels.
Do you know of any research-based projects in local communities, institutions or on national levels, where ‘care’ is central?
I have been in touch with different contexts relevant to my art work and research in the UK and beyond, including conducting ongoing dialogue with Ecofeminist Laura Cima (Italy, see my A-N Bursary blog 2018), and the Moleskine Foundation, whose social and pedagogic work through art takes place internationally including Africa. I am always interested in gathering more information about associations and organisations specifically in the context of artistic practice and care, and these include for example: the research centres CAMeO, at the University of Leicester (UK), or the projects Laboratory for Aesthetics and Ecology (Denmark), and Pier Projects (UK).
However, there are many wonderful socially engaged projects, institutions, artists and curators I have been following out there, whose remit is to impact society, and whose approach resonates with care ethics, even if in a wider sense, in terms of supporting social cohesion, denouncing and acting on climate change, address geopolitical issues, support inclusive gender policies, and intercultural dialogue. These are, including: VISIBLE Project (Belgium/Italy), Museum MIMA (UK), Arte Útil by artist Tania Bruguera, curatorial platforms PUBLICS (Finland), Arts Catalyst (UK), Vessel, and Connecting Cultures (Italy), to mention just a few.
Maud Cloudesley Brereton, The Mother’s Companion (1909), detail from Contents page. Published when Brereton was a mother of five children. She had been honoured by the French Academy for her work in promoting public health. Sir Lauder Brunton, a leading medical practitioner with an international reputation, and a founder of the National League for Physical Education contributed a Preface. Published by Mills and Boon, best known for their popular literature and practical handbooks.
Display of selected items from the College archive on Maud Brereton and Leah Manning.
Indoor Gymnastics (1944/5). Photograph of scenes from Homerton’s past, showing students participating in gymnastics classes. Learning about health and moving the body was an important part of historical curricula.
Installation view in the Ibberson Gymnasium, Homerton College, University of Cambridge. The arrangement of the display was inspired by archival photographs of the room, whose architectural design was punctuated by wooden panels corresponding to the areas in between the curved windows. On view are reproductions of the original items kept in the College Archive, as well as selected sport equipment. The newly produced rope sculptures refer back to the time when the space was used as a gym since it was built in 1914.
Relations of Care, Elena Cologni (2018, pair of mobile sculptures, steel rods, jute ropes, 2.5 x 2.5 x 2 metres each).
Care Proximities, Elena Cologni, installation view in front of the Ibberson Building, Homerton College, University of Cambridge (2018, installation including two sculptures and drawing on college lawn: wood + lawn marking paint, 20x100x0.5 meters)
Care Proximities, Elena Cologni, installation view in the college lawn.
Installation view including: Mother’s Tools, Elena Cologni (2018, 1 in a composition of 4: wood, steel, custom-made fabric labels, printing tools from the artist’s mother’s embroidery kit, 20cmx20cm each); and Care Notes, Elena Cologni (2018, graphite prints, graphite pencil, laser print on paper, Moleskine Japanese album, with inserts of fabric designs from the Architectural Review Magazine, June 1936, 21cm x 120 cm).
Mother’s Tools, detail from installation
Portion of display with content from the College archive, including contents of a needlework box (1861-2). Bought for 12s 6d, this box belonged to Emma Hunter, a student at Homerton College in the early 1860s. Dressmaking was an important skill for students in their adult lives, and in preparing a younger generation of girls at school for home-making and motherhood.
Care Is Relational, and Care Instructions, Elena Cologni (2018, 2 from series of woven labels, the first of which is inspired by Virginia Held’s writings, and the latter by Maud Brereton’s revolutionary position at the time, that domestic labour should be paid) Copyright Ó Elena Cologni, Homerton College, University of Cambridge and Moleskine Foundation
Cologni, E. (2016) Dialogic Approach For The Artist As An Interface In An Intercultural Society. In Burnard, Mackinlay, Powell, The Routledge International Handbook of Intercultural Arts Research New York, London: Routledge.
Cologni, E. (2018) Locating oneself, in The New and History – art*science 2017/Leonardo 50 Proceedings. Capucci and Copolletta (Eds), Noema Media and Publishing (ISBN 978-88-909189-7-1)
Held, V. (2006) Justice and Care: Essential Readings in Feminist Ethics Boulder, CO: Westview Press, 101-115.
Held, V. (1993) Feminist Morality: Transforming Culture, Society, and Politics. Chicago, IL: University of Chicago Press.
Held, V. (2006) Ethics of Care, Personal Political and Global. New York, NY: Oxford University Press.
Held, V. (2018) Care Ethics and the Social Contract, unpublished lecture, Oxford.
Noddings, N. (1982) Caring: A Feminine Approach to Ethics and Moral Education. Berkeley: University of CA Press.
Fisher, B. and Joan C. Tronto (1990). Toward a Feminist Theory of Care. In Circles of Care: Work and Identity in Women’s Lives, edited by Emily K. Abel and Margaret K. Nelson. State University of New York Press.
Tronto, J. (1994) Moral Boundaries: A Political Argument for an Ethic of Care. New York, NY: Routledge.
The discussed project ‘CARE: from periphery to centre‘ was developed with contributions from University College London Library; Cambridge University Library; The Harlow Art Trust: Gibberd Gallery, Harlow. The project was part of Cambridge Festival of Ideas 2018, was commissioned by Homerton College of the University of Cambridge for the 250th Anniversary Celebrations, and kindly supported by the Moleskine Foundation. www.elenacologni.com
Copyright Elena Cologni, Homerton College, University of Cambridge and Moleskine Foundation
Toward an Asymmetrical Ethics: Power, Relations, and the Diversity of Subjectivities
International conference organised November 13 to 15 by the Centre for Studies in Practical Knowledge at the School of Culture and Education, Södertörn University.
In Western societies and philosophical traditions, the egalitarian relation between rational subjects has since long been understood as an ethical ideal for intersubjective relations. This ethics presupposes a relation between two independent subjects of the same kind: autonomous, rational, and (self-)transparent subjects. And even when this understanding of subjectivity is not applicable, the ideal remains the same.
When this egalitarian ethic is applied to, for example, relations between children and adults, humans and animals, care-giver and patients with dementia, teachers and pupils, there is a risk that the variety of subjectivities involved in these relations will not be acknowledged, and thus opens up for a hidden abuse of power. These problems are also relevant for empirical research where asymmetrical relations are at the center, for example research that aims at giving voice to other subjectivities, which also turns this into it a question of methodology and research ethics.
But are not all relations asymmetrical? Human life itself begins as an asymmetrical relation between a pregnant mother and her fetus. And perhaps, as is the case in this relation, asymmetrical relations need not be based in injustice. We can even ask ourselves if anyone in fact lives up to the ideal of rational subjectivity presupposed by egalitarian ethics. Instead, a description of asymmetries might reach an intrinsic dimension of intersubjective life and an understanding of such asymmetries that would make our understanding of different kinds of subjectivities and relations richer.
But how are we to formulate an ethics of asymmetry that moves away from the long-standing influence of “symmetrical ethics,” which permeates contemporary life? Where, and how, is it needed? How would it be possible to develop an asymmetrical ethics that is not caught up in power abuse, static and rigid relations, or locked in fixed hierarchies? And how can we formulate an ethics of asymmetry in which the meaning of equality, integrity, power, freedom, etc., can be thought anew?
Questions and topics
We invite researchers from all human and social sciences, as well as artistic researchers and artistic practitioners, to investigate these questions further. Questions and topics may include philosophical issues of asymmetrical ethics, for example the asymmetrical nature of life, asymmetry and power, and asymmetrical relations within an egalitarian ideal. We also invite submissions from broader research areas that may include human-animal studies, disability studies, studies on elderly care, educational relations, childhood studies, theory and methodology of science, etc.
We invite individual papers or panels. Please submit your abstract of maximum 300 words for papers and 600 words for panels to email@example.com, latest August 30, 2019.
Feminist Care Ethics has received extensive attention in a variety of fields over the past quarter century including political science, philosophy, education, social work, sociology and more. There has been relatively little discussion of Care Ethics in the field of Religious Studies. Surprisingly, given that virtually all mainstream religions hold care and compassion as a major tenet. Care Ethics and Religion will be a volume of original essays that fills this intellectual gap.
Editors Maurice Hamington, Carlo Leget, Inge van Nistelrooij, and Maureen Sander-Staudt invite papers on the topic of Care Ethics and religious teachings, traditions, identities, practices, practitioners, as well as atheism and humanist spiritual traditions. All contributions should engage feminist Care Ethics as exemplified by scholars such as Marian Barnes, Carol Gilligan, Nel Noddings, and Joan Tronto.
Care Ethics is a moral theory and interdisciplinary field of studies/enquiry, rooted in relations of interdependency and universal human needs for care. The ethic departs from moral theories such as Utilitarianism, Kantianism, and Neo-Liberalism in critiquing their individualistic, rationalistic, and abstract elements as distortions of lived human lives.
Care Ethics postulates that humans are universally born in need of embodied and social-psychological care. Making care ontologically prior to moral concerns such as justice. Despite the universal need for care which makes care-giving an essential practice without which human life would cease, the ethic situates care giving practices in particular places, times, and identities.
Given the extent to which care giving overlaps with richly diverse religious and spiritual identities, beliefs, rituals, and traditions, this volume seeks to expand the field of Care Ethics to consider how religion, construed for global religious and secular audiences, potentially enhances but can also destabilize the goals of care.
Commentary and analysis
The editors of this anthology invite critical commentary and analysis on how religion, both organized and less formally arranged, may facilitate or erode the normative goals associated with Care Ethics. To the extent that many religions recognize the human and embodied need for care, and valorize the moral obligation to give and take care as having a divine component, it is sometimes the case that religious practices enrich care.
At the same time, as a feminist ethic, Care Ethics is well situated to uniquely critique and question a wide variety of religious motifs, practices, and teachings in light of how well they do and do not succeed in completing the goals of care in ways that are competent and just. This volume seeks to initiate discussion of the possible affinities and strains between Care Ethics and religion, broadly construed, and to indicate areas in need of future study.
Possible questions/topics may include but are not limited to:
How does religion contribute to caring identity and practice?
Are caring virtues also religious virtues, and the converse?
Ideal syntheses of care ethics and religion/spirituality
Care-ethical and religious perspectives on precarity and compassion
Care as a religious motif
Care ethics, atheism and secular humanism
Care ethics and non-supernatural spiritual traditions (e.g. Buddhism, Taoism)
Care, religion, and anthropocentrism/relations with the natural world
Care as instrument of religious colonialism and oppression
Religion as catalyst for care completion and social equity
Care ethics and theology on love and compassion
Care ethics as a critique of religious theory and practice
Coping with suffering, death, and loss
Queering care ethics and religion
Spiritual violence and care
Care as a gendered and intersectional religious theme
Care, religion and sexuality
Care as a marginalized, disenfranchised, and appropriated concept in religion
Care and religion as slave moralities
The role of embodiment in religion and care
Contested concepts: care, love, compassion in religion
Care and God; the divine; good/evil; heaven/hell; the afterlife
In the last two decades there has been significant reform in terms of what governments do, and how they work, as a result of the digital revolution. In some areas, governments have embraced these technologies and worked to enhance their effectiveness and efficiency.
However, there have also been many cautionary tales of what can go wrong when technologies are inappropriately adopted or unintended consequences have emerged as a result of introducing disruptive innovations.
This report focuses on one particular area of technological development – robots – and their governance. It explores the roles that robots should and, even more critically, should not play in care delivery, and the role that government has as a steward in shaping these roles.
An output from the ANZSOG-funded project ‘Robots and the delivery of care services: What is the role for government in stewarding disruptive innovations?’ ((Dickinson, H., Smith, C., Carey, N. and Carey, G. (2018) Robots and the delivery of care services: What is the role for government in stewarding disruptive innovation? Melbourne: ANZSOG. ))
Robots and the delivery of care services
What is the role for government in stewarding disruptive innovation?
The ways that care was spoken about in this project seems largely to be consistent with that put forward in the ethics of care literature (Tronto 1993). An important facet of an ethics of care perspective is that it does not view care as something that is simply done to individuals, but as a reciprocal practice. When interviewees discussed a number of robots they told us that a crucial part of their use was the relationship developed between the individual and the robot. (p. 26)
Individuals gained positives from these interactions because of the reciprocal relationship they developed with the robot. Interviewees also raised possibilities about the impact that robots might have on existing relationships (for both good and bad). The majority of those we interviewed argued that humans are essential to care relationships and that the use of robotics should not be as a replacement. (p. 26)
The research points to the need for governments to play a more active and considered role in robotic technology – from development through to implementation and regulation. (p. 28)
Facing the death of other people, we are confronted with our deepest convictions of what makes sense and what does not.
A mother of four should not die of breast cancer in her mid 40s, for this runs contrary to whatever possible order of justice in the world. A beloved father in a vegetative state should not die a horrible death when feedings tubes are withdrawn. Even when he had always stated that he would not have wanted to live in this condition.
In most people, witnessing someone dying, evokes a multitude of emotions and thoughts, ranging from feelings of guilt or responsibility to sadness, anger or sometimes even joy. Emotions are important human reactions to situations, containing knowledge and appraisals of reality, and having an intelligence of their own.
Carlo Leget discusses in an editorial in the journal Palliative Medicine the importance of understanding and respecting emotions of family members of dying patients. It, for example, mentions the importance of culture in ethical issues, and how difficult it can be to respect cultural diversity, especially when it touches upon our deepest felt emotions and convictions.
“Ethics is a cultural product based on a shared legacy and lived experience reflected in a particular language, history, and traditions. “
Ethics, emotions and culture: Respecting moral diversity
The experience of being involved in the dying process of another person has an impact on almost every human being. Whether this involvement is that of a professional care giver, a relative or a volunteer seems of secondary importance.
The direct confrontation with a dying process is an experience that confronts us with the finitude and irreversibility of human existence. In most people, this evokes a multitude of emotions and thoughts, ranging from feelings of guilt or responsibility to sadness, anger or sometimes even joy.
Emotions are important human reactions to situations, containing knowledge and appraisals of reality, and having an intelligence of their own.
Changing priorities: The making of care policy and practices
The International Journal of Care and Caring is pleased to support the 4th Transforming Care Conference, 24-26 June 2019, to be held at Eigtveds Pakhus, Copenhagen, Denmark on the theme: Changing priorities: The making of care policy and practices.
Papers at the conference will be on the 2019 conference theme or on one of the topics around which the overall Transforming Care conference series is structured:
The institutional setting of care systems and care policy
Care arrangements and practices, organised through formal and/or informal channels
Social and policy innovation in care services and care arrangements and its impact and dilemmas
Formal and informal care work
International Journal of Care and Caring at Transforming Care 2019
At the conference, the Policy Press will host a reception marking the third year of publication of the International Journal of Care and Caring. Members of the journal’s editorial team and Editorial Advisory Board will be available to discuss the remit and purpose of the journal and opportunities to publish with IJCC.[pullquote]Visit for details on the conference the Calendar.[/pullquote]
Policy Press will also launch a joint International Journal of Care and Caring/Transforming Care Conference Call for Guest Editors of a Special Issue of IJCC on Transforming Care at the reception. For further details of this, please visit the journal’s website.
We invite scholars to express their interest in submitting an abstract to the selected Thematic panels(TP) of the Transforming Care Conference 2019.
Abstract submission will be open from November 1st to January 31st, 2019. Please note that you are required to the submit your paper to the conference website by June 1st 2019. The paper will be available for the conference delegates through the conference website.
Abstracts should be about 500 words and should contain the following information:
Main issue analyzed in the paper and its relevance
Type of methodology and sources of data/information used for the analysis
Main findings expected from the analysis
Once we have all paper abstracts, session conveners will assess and rank all abstracts submitted for their session, finally selecting up to 4 papers, plus up to 2 contributed papers.
We will notify you whether your paper has been accepted by Feb 28th, 2019. Early Bird Registration will also open February 28th and close.
Paper abstracts may only be submitted online by filling out this form: filling out this form: please do not send abstracts directly to stream convenors.
The Carework Network is organizing a three-day conference to bring together carework researchers from across disciplines and across the globe; June 9-11, 2019, Toronto, Ontario.
Top ten reasons to attend the Global Carework Summit in Toronto
Be inspired and challenged by Juliana Martinez-Franzoni, a leading scholar of care in Latin America, whose innovative work draws links between policy regimes and care.
Hear Pat Armstrong’s latest thinking about care work and the intersections of scholarship and communities based on her groundbreaking international collaborations.
Engage with authors at one of our ‘Big Book Ideas’ sessions and bring your own book to share at our informal book exchange.
Dialogue with care scholars from the UK, Australia, Costa Rica, Singapore, New Zealand, Chile, Poland and many other countries (add yours here by coming to join us!!).
Attend panels that combine academic and activist knowledge and help us think about how to change the world one project at a time.
Enjoy the affordability of the conference registration fee (and free lunch!) while visiting a vibrant, diverse, urban setting with endless possibilities to try unique food.
Contribute to a special issue of the International Journal of Care and Caring on “The Changing Character of Carework: New Risks and Responses.”
Stay an extra day or two to visit the renowned collections at the Royal Ontario Museum and cutting edge exhibits at the Art Gallery of Ontario, or to explore Toronto’s beautiful neighborhoods and green spaces.
Learn about the pioneering work of the International Labour Organization (ILO) in making the care economy front and center in multinational policy conversations.
Connect with a dynamic and passionate group of scholars, opening up pathways for ongoing networking, innovative collaborations, and fun.[pullquote]Carework Summit 2017[/pullquote]
Call for abstracts and papers
Abstracts are due December 1st, 2018 to be considered for participation in the second Global Carework Summit to be held in Toronto on June 9-11, 2019.
When submitting your abstract for the Global Summit, please indicate in your email if you would like your paper to be considered for the special issue of the International Journal of Care and Caring. We will be inviting authors to submit a full paper for consideration in the special issue based on abstracts submitted to the Global Summit.
International Journal of Care and Caring special issue: Call for Papers
The changing character of carework: New risks and responses.
The world in the early 21st century is one characterized by rapid change, increasing risk (Beck 1992) and growing inequality and insecurity for many (Milanovic 2016). This special issue will analyze both formal and informal carework in the context of the political, social, and economic changes and displacements that have produced the insecurities and risks that mark this period of late modernity.
We are focusing on four streams within the special issue, all related to our broader topic.
The growth in precarious and low-wage work (Kalleberg 2011) as it relates to informal and formal carework
Growth in the low-wage and precarious work and the ability of families to provide care
The impact of changes in the economy and labor market on who is providing care, both formally and informally
Low-wage work and formal careworkers
The expansion of the health care / care sector in today’s economy
Technology and carework
The impact of technology on how care is provided, both informally in the home and formally
Depersonalization and technology
Technology and job quality/job availability for careworkers
Immigration and carework
Migration of careworkers around the globe
Immigrant care economies (immigrants providing elder, disability or child care to other immigrant communities)
Informal multigenerational care in immigrant families
The changing family and carework
Changes in the structure of the family and the provision of care – single motherhood, dual-earner families, same-sex marriage, etc.
The political context of the family – policy and support (or lack thereof) for families in the provision of care